July 10, 2014

SIMON IS HOME!!!!! He spent a full week in the hospital.  Everyone was missing him here, especially Goomba.  I would turn around and get this look a thousand times a day.

During Simon’s stay, he had four procedures, over eight liters of fluid drained, and six blood transfusions. We had meetings with specialists in Oncology, Respiratory, Nephrology, Pulmonary, Interventional Radiology, Reflexology, Physical Therapy, Social Work, and Pain Management.  A CT scan yesterday revealed no new cancer growths in the last three weeks, so if this first hurdle is really behind us, we may have some good days ahead.

We are hoping to begin our new normal.  We had friends over to help reconfigure the house.  Our bedroom is ready to operate like a hospital room.  We have the hospital style bed, the oxygen, the medicine, and monitoring equipment. We’re working with local doctors and nurses to set up palliative care at the house.  While we do love our local hospital, we’d rather not keep ending up there.

By the way, palliative care is not the same as hospice.  I didn’t know that at first.  I don’t feel like explaining it so just read this: http://en.wikipedia.org/wiki/Palliative_care
Simon will begin treatment in just a few days. As a reminder, this specific cancer has not been cured before at the stage Simon was diagnosed with. There’s one FDA approved drug that can slow tumor growth with minimal side effects. We are holding on to that hope.  Clinical trials are still an option that we can continue to research. And we know that miraculous healing is still possible, but we are not going to be foolish or ill-prepared if that’s not the case.  I’ll be giving a nice rant on preparation soon.  But for now, SIMON IS HOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
This is him getting out of the car. He hadn’t seen sunlight in a week and wasn’t very excited for the photo op.


But then, he got in his comfy new bed and all was well again.  Welcome back, we missed you.



  1. Marissa on July 10, 2014 at 6:29 pm

    Leave it to the veterinarian to comment on what a cute dog you have, and to let you know that dogs can provide amazing therapy themselves! Hope Goomba provides Simon and the family lots of comfort and love 🙂

  2. Molly Wren on July 10, 2014 at 6:54 pm

    Hooray! Glad you’re home, Simon!
    Sending tons of love & prayers from Texas!

  3. Blayne Hunt on July 10, 2014 at 7:36 pm

    Such Amazing News! I am so happy for you all!
    Still praying!!!

  4. Belinda Pettit on July 10, 2014 at 7:49 pm

    So thankful he is home! Blessings to him and your family, God is truly in control ……praying always

  5. Lori Rutherford on July 10, 2014 at 7:52 pm

    You know, that recliner looks like an iPic recliner! When you’re feeling better…. 🙂 Glad Simon is home! Yaaaaaa

  6. meg mcgoogan on July 10, 2014 at 8:03 pm

    So glad Simon is home! No new growth is a good thing,also. Will continue to keep all of you in my prayers.

  7. Kristina McCloskey on July 10, 2014 at 8:23 pm

    So excited for you and the family! Thanks for continuing to share your heart and journey. Continuing to pray.

    • Deanna Wills on July 10, 2014 at 8:35 pm

      I’m so glad you’re home, Simon! glad for all of you. Now you get the good food, the dog licks, and lots of hugs, kisses, and giggles! 🙂

  8. Linda Cuccia on July 10, 2014 at 8:59 pm

    Home sweet Home !!

  9. Jan on July 10, 2014 at 10:16 pm

    YAY!!!!! So glad you are home with your family , Simon!! Here’s to better days ahead! Praying for that miracle!!

  10. Gina Rossman on July 11, 2014 at 4:22 am

    Congratulations on your homecoming Simon! There’s no place like home or your own cozy bed! I can only imagine how happy the kids are to have daddy home! Thank you God, praise the Lord and Amen! Also, thank you Kristy for the updates. They mean so much….

  11. Jan Clayton on July 11, 2014 at 5:06 am

    So glad Simon is at home! I know the kids are excited to have him out of the hospital. We continue to lift your family in our prayers daily. Love all of you!

  12. Lynn on July 11, 2014 at 6:30 am

    So excited to read this update! Uncle Steven and Aunt Jan are very dear friends of ours and shared your journey with us. Praying from Texas to the One Who is totally has this- for healing, for strength, for joy and laughter to fill your home as you celebrate Simon’s being home!!!

  13. Austin Nikel on July 11, 2014 at 8:42 am

    Stephanie and I are continuously in prayer for you guys. Glad to see Simon is back home–thank you for keeping us all updated on his status!

  14. Milton Lundy on July 11, 2014 at 1:22 pm

    Your Amtrak family has you & yours in our thoughts and prayers. Great Update…….

  15. Susan Stanley Caver on July 11, 2014 at 1:31 pm

    Great to hear Simon is home 🙂

  16. Susan Stanley Caver on July 11, 2014 at 1:37 pm

    Oh, and I am praying for complete healing! I think Simon would make a good poster child (adult) for God’s Miracles 🙂

  17. Alison Werner on July 11, 2014 at 2:32 pm

    I think I could make a very special dictionary , full of words of praise and hope and love and excitement…..and many, many more!!! God is good, and He is never finished… Bless you one and all; Alison( the elder, with just one l!!!)

  18. Jaclyn Duran on July 11, 2014 at 4:50 pm

    Haha your dog is too cute. Welcome home Simon!

  19. carmella on July 11, 2014 at 9:23 pm


  20. Erin Rodriguez on July 11, 2014 at 9:36 pm

    Love you! Thinking of you all and praying!

  21. Shirley Clemons on July 12, 2014 at 5:08 pm

    No matter where we go or how far we go “THERE’S NO PLACE LIKE HOME”. Simon, you are a miracle in process and HE’S not done with you yet. All it takes is FAITH. See you soon.

  22. Kelly Galea on July 12, 2014 at 11:08 pm

    So thankful Simon’s home where he belongs… with your family!

  23. Ashley Russell Stowers on July 14, 2014 at 8:33 pm

    So glad he’s home and y’all have the support of Palliative Care. Again, I work in PC for Kaiser in Ga. I know Kaiser is big in Ca. Praying for comfort and his goal to get to Texas. May peace be with you.




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