July 19, 2014

2014-07-18 15.16.48

We bought greeting cards for every milestone for each of our children from now until adulthood – Birthdays, Graduations, Weddings, Babies etc. Simon will be writing and signing during his free time. It was really tough organizing the cards and thinking ahead to each event, knowing he probably won’t be there unless a miracle happens.

Day to day is manageable.

Living life in the moment is doable.

The future is the hardest to digest.

Today was a day to cry and cry some more.

We both did.

But we’re thankful that we get the opportunity to prepare.

And there is joy in imagining how our kids will be when they’re older.
Maybe Simon should write a preemptive warning/thank you to our middle daughter’s future husband…


  1. Linda manley on July 19, 2014 at 8:43 am

    Praying for that miracle….

  2. diana on July 19, 2014 at 8:43 am

    You are so good. I love you.

  3. Tara Collins on July 19, 2014 at 10:13 am

    Prayers for a supernatural miracle.

  4. Stacia Narasky on July 19, 2014 at 10:15 am

    I love this idea! The kids will appreciate this so much when they are older.
    Love you guys!

  5. Erin Rodriguez on July 19, 2014 at 10:26 am

    Wow! That is such a beautiful idea! Simon your strength is undeniable! Love you my friend!

  6. Shannon on July 19, 2014 at 10:51 am

    This one definitely made me have to catch my breath. I love that Simon is doing this, and that he’s able to do this, but yes, sometimes thinking of the future is just too much. I cry thinking of you guys talking about these things, I can’t imagine having to do them.
    Love to your family.

  7. Erica Gunderson on July 19, 2014 at 10:59 am

    I can’t even. Wow. This made me cry and it made me smile. You guys are lovely. Praying for that miracle!

  8. Donna Stanley on July 19, 2014 at 12:47 pm

    Oh my dear children, don’t give up yet. The Lord still answers
    Love you,
    Maw Maw

  9. Steffanie Fitzpatrick on July 19, 2014 at 1:18 pm

    Miracles happen!! What a lovely gift for the children someday to cherish.

  10. Michelle Stevens on July 19, 2014 at 2:03 pm

    I think the card to the middle daughters husband is a wise idea…

  11. Daveandkaori on July 19, 2014 at 2:29 pm

    We prayed for Simon in my apu class yesterday. Our family will continue to daily pray for simon your family and gods healing hand and presence to bring peace that passes all understanding. Dave kaori and Anna

  12. Meg McGoogan on July 19, 2014 at 3:24 pm

    Keep doing what you need to do, the strength, consideration , humor and love you so beautifully write about bring on the tears and amazes me. I will continue to pray for Gods healing grace for this exceptional young man.

  13. Sharlyn Teale on July 19, 2014 at 5:14 pm

    Praying for a miracle!

  14. Christine Mariscal on July 19, 2014 at 8:39 pm

    What a beautiful idea. Making me cry with you – from Corona that is. Praying for healing and peace for you guys constantly.

  15. Brandy Law Scoggins on July 20, 2014 at 4:23 am

    Oh, Kristy….this one hurt…first thing I read this morning and I just want to wrap my arms around those babies and tell you and Simon that everything is going to be okay *tears*…liver cancer….cannot cripple love… cannot shatter hope…cannot corrode faith…(unknown)…did the opposite instead… may your love grow and deepen, may your hopes surpass anything this earthly world has offered, and may your faith strengthen to peace…………after my husband passed… I longed for these things to have for our boys *tears*….we couldn’t do it….one of my biggest regrets…I learned so much during our battle with liver cancer…but you have and are showing me so much more…thank you for letting us be a part of your very personal journey…you and Simon have touched all of our hearts so profoundly….

    I know the statistics…but I’m holding out for your miracle. Pray it everyday…reading Miss Donna Stanley’s comment….yes…..

  16. Jennifer Stewart on July 20, 2014 at 2:29 pm

    You do not know me, but I have been following your story for the past few weeks. Mr. Tom teaches my girls in Sunday School in Atlanta and they just love him to pieces so I can only imagine how awesome Simon is. I am not from Atlanta, but my husband is so I it took me a while to make the connection. I just wanted you to know that you are in my prayers and I will continue to pray for God’s miracle because I know that He can provide.

  17. Harry on July 21, 2014 at 9:42 am

    Hold on to your mustard seed.

  18. Kristin Romo on July 21, 2014 at 12:35 pm

    Pretty AMAZING idea, just like ALL your ideas Kristy. Tears, as with reading most of your blogs, but this is such a hopeful, future thing. What a legacy you are leaving for them. Not to mention the legacy of an amazing Dad who loves them to pieces.

  19. Meg McGoogan on July 22, 2014 at 9:31 am

    Praying with conviction and thinking of y’all not just today but everyday!

  20. Lily on July 24, 2014 at 3:54 pm

    This entry got to me the most, thinking about it alot.
    I can’t even imagine how much emotion goes into each card he is writing.
    You both are so strong.

  21. Kristal Flippo-Beene on August 1, 2014 at 10:06 pm

    Hi Kristy. I just recently found out about Simon. I’m from that beautiful small town of Atlanta, and actually graduated with Sam. I started reading from the beginning of this blog this evening. Your love for Simon is absolutely amazing! How you can be so strong and brave, I just cannot imagine. This particular post has brought forth the water works. You have opened my eyes to have these conversations and plan for our future. It is hard to discuss death!
    Your strength amazes me! I am praying for Simon, You, and your beautiful babies!




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