A Setback

June 28, 2014
20 Comments

simon nose

Before we  continue the saga of how Simon and I met,  it would only be fair to tell you about his setback today.  We promised to be honest and keep everyone updated so here goes.  He spent the day in the ER trying to get his pain under control.  He woke up today and couldn’t really do anything.  Couldn’t stand,  couldn’t sit, couldn’t lie down.  He had extreme abdominal and back pain and we would not take the risk of waiting it out. His amazing family is still in town and were by our sides from the beginning to end.

The bit of good news: his labs and x-rays came back the same.  So the cancer didn’t do anything more vicious than it already has in the last week.  That gives us a glimmer of hope that treatments may work to slow the progression when we go for second opinions next week.  But the bad news is that until we get a better system down for pain management, he is on much stronger doses of meds AND full time oxygen.  As in, there is now a machine in our bedroom and if he wants to leave the house, he has to wheel a dolly with a giant tank behind him.  And the tank only lasts two hours.  If you saw that movie “The Fault Between Our Stars”, you were lied to.  That cute little roll-y oxygen tank she has would have only lasted about 15 minutes per tank.  We know that because we’re kind of oxygen experts now.

feetI won’t leave you with a negative thought, that’s not helpful.  One of the cards we received this week from a widow and widower that remarried said, “What we can offer is limited.  What God can offer is unlimited.”  That’s just what we needed to hear.

 

20 Comments

  1. Don Boulter on June 28, 2014 at 5:46 am

    Our prayers are continuing! You both have been a joy to know and we have always loved hearing about your next adventure. This one is the toughest by far, but God is in control and your witness to the world is amazing. Many non-christians are watching you! God is using you in ways you’ll never know. I know Gods healing power and pray you will see it as well.



  2. Erin on June 28, 2014 at 6:38 am

    Hope they were able to manage his pain better. Love and hugs from too far away❤️.



  3. Linda Cuccia on June 28, 2014 at 7:29 am

    Our prayers continue. You and your family are never far from our thoughts. Hugs my friend I wish I could give you one



  4. ismael on June 28, 2014 at 7:51 am

    My heart goes out to your family. Praying for all of you.



  5. Veronica on June 28, 2014 at 8:15 am

    Praying for good pain control and grace. It’s horrible to be in pain and horrible to watch someone you love in pain. Praying for an incredible miracle!!!!



  6. Belinda Pettit on June 28, 2014 at 10:44 am

    Thoughts and prayers from the Pettits in Atlanta. …..that HOPE will continue to rise up ….that comfort will settle in Simon. Thank you for the updates and the privilege to pray for your family. Love in Christ.



  7. Donna Kyzer rice on June 28, 2014 at 11:20 am

    I was one of Simon’s 6th grade teachers. From the day we received this news, I have been intentionally praying and thanking God for doing what only He can do in Simon’s body. I am relentlessly believing for his healing. Please know that our family will continue. I also have him on out prayer list at Faith Community Nazarene here in Atlanta, Texas. Much love to your family.



  8. Tara Collins on June 28, 2014 at 4:07 pm

    Continued prayers for Simon and for your family. Trusting & believing that the pain will ease and you all will be able to rest and relax.
    Hugs, Tara Collins
    Atlanta, Texas



  9. Beverly Pennington on June 28, 2014 at 4:47 pm

    Simon you and your family will be on our prayer list. Praying not only that God’s Will be done, but also for ease of your pain and discomfort.



  10. Josh Clayton on June 28, 2014 at 5:49 pm

    Hey Simon! Been a long time man. I just wanted to let you know what an inspiration you and your wife have been through this trying time. Reading her posts and seeing pics of you still cutting up regardless of your circumstances or how you feel is an example we should all take notice of. I’ve been praying for you since I learned of your situation and will continue to do so diligently. Know that we still love ya down here in good ol’ Atlanta, bud. Love and God Bless….



  11. Linda manley on June 28, 2014 at 6:41 pm

    Praying that the pain was managed and that Simon is feeling better. Continued prayers from Atlanta….



  12. MacKenzie Gunter on June 28, 2014 at 7:21 pm

    Lifting up the Caver family in prayers. Thinking and praying for you Simon.



  13. LaDonna Tyson on June 28, 2014 at 7:36 pm

    I remember Simon as a little boy in school with my daughter Susie. I know that God heals and does miracles today. I’m believing for a creative miracle and peace in the midst of this life storm. Asking God to take away all the cancer, and all the pain and restore all that has been taken. Blessings❤️



  14. Michelle Stevens on June 28, 2014 at 7:40 pm

    Simon-I love you! I love your nutty picture even when you feel like crap! One of the many reasons you have been and will be a long time friend. Kristy I love the candor with which you write. A book should come out of all this, well at least one called “birth control for teens” those face book posts and pictures are cray funny! Just wanted to lighten the tone, prayers from this crew and any one else I can recruit.



  15. Jake & Amanda Bickham on June 28, 2014 at 7:45 pm

    Praying daily for both Simon and the family!



  16. Debbie White on June 28, 2014 at 8:34 pm

    Simon. I am still here praying for you. Sorry to hear that you are having difficulty in pain management. Hope tomorrow is much better. Loved the pic of you. Big hugs



  17. Heather & Jason Ryan on June 28, 2014 at 9:16 pm

    We’re sending prayers as big as Texas!!! We love you both and admire your honesty, openness and fantastic sense of humor. *high five*



  18. meg mcgoogan on June 28, 2014 at 10:11 pm

    Praying and believing in God’s healing for you, Simon. Keep your positive attitude and smile as I will continue to pray each day you will beat this! Love you and your family.



  19. Kathy O'Kelley on June 29, 2014 at 5:47 am

    Continuing prayers for your sweet family. Thank you for taking the time to update us.



  20. Susan Simmons on June 29, 2014 at 5:57 am

    We are lifting you and your precious family up to the Father daily, Simon. Love from the Simmons



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